http://www.baltimoresun.com/news/maryland/anne-arundel/ph-ac-cn-filmons-face-0702-2-20150731-story.html
African teen comes to Annapolis for a new face
July 31, 2015
speaks with his face turned down, his eyes on the floor, or he turns
away, offering only his profile.
>From thst angle, it's almost unnoticed: the droop of his nose, the
concave cheeks, the pinched mouth with 13 teeth — three top, 10
bottom, too few to chew steak.
The face of a child.
But Filmon Haile is 19.
"Look how small it is," says Dr. Edward Zebovitz, lifting a plaster
cast of Haile's jaws. The bottom one is about an inch long.
It's Friday morning at Anne Arundel Medical Center, the day Zebovitz,
the former chief of oral and maxillofacial (face) surgery at the
hospital, will embark on the most demanding operation of his 20-year
career.
Down the hall, Haile waits with his mother. They traveled nearly 7,000
miles from the Horn of Africa, the city of Asmara, capital of Eritrea
— where Haile would hide his face beneath a black scarf.
"When I met him, I was like, what did he have?" says Zebovitz, of
Annapolis. "There was no syndrome that he fell into."
Haile arrived with medical records, though. He was 2 years old when a
tumor grew on his cheek like an acorn.
American doctors, Zebovitz says, wouldn't try radiation on a toddler.
That radiation, on Haile's face, stunted growth. His body developed —
his face lagged.
The face of a child.
"I have a problem meeting people," Haile says. "They laugh at me and
ask many questions."
He has no Facebook profile.
Surgery "is going to change my life completely," he says.
Zebovitz spent weeks planning the cuts along cheekbones, eye sockets
and jaws. Titanium devices will be screwed on cut bone beneath the
skin. These devices, called distractors, will extend screws behind
Haile's ears.
The screws will be turned and, millimeter by millimeter, bone will
separate; the process is similar to the way dental braces work. The
titanium plates open like elevator doors, and bone regrows in the gap.
"It's all engineering," Zebovitz says.
A third screw will extend from Haile's gum line and, when turned,
shift forward his jaw, a third of a millimeter per turn — about half
an inch when finished — but still a journey considering the fine
contours of the face.
"If it's off just a matter of 10 degrees, it could start the bone
growth in the wrong direction," says Dr. Douglas Fain, of Kansas City,
Missouri.
He's not participating in the surgery but serves as vice president of
the American Association of Oral and Maxillofacial Surgeons.
The technique was developed in the 1950s by Russian professor Gavriil
Abramovich Ilizarov, mostly to lengthen the bones of patients with
uneven legs. In the 1990s, Fain says, it was applied to bones of the
face.
Still, Haile's surgery is ambitious.
"Because of radiation therapy at such a young age and just how big the
magnitude of the movements are," Zebovitz says.
Haile's lower jaw will shift forward 12 millimeters in four weeks.
At 7:30 a.m., operating room 15 in the Annapolis hospital is prepared
for 10 hours of surgery.
Haile's mother, Zemzem Abedalla, kisses her son on the face. His
cheekbones are paper-thin.
She turns to Zebovitz.
"God bless your hands."
Meeting the doctor
They met in May 2014.
Zebovitz flew to Eritrea to perform free surgery on patients with
cleft palates for his charity, Surgeons for Smiles.
During training, Zebovitz saw four clefts, then encountered 25 during
his first charity trip to the Philippines in the 1990s. Next came
Bangladesh, Nigeria, Nepal, Caribbean Islands. His record: 71 clefts,
five days.
In Eritrea, Dr. Laynesh Gebrehiwet introduced Haile.
My Time: $100,000 in scholarships given to AAMC nurses
"I was never quite sure why she felt so strongly that I needed to
treat him," Zebovitz says. "She was very adamant. She cares about her
patients so much. She just has some type of bond with Filmon. I
respect her so much, I was like, OK."
Zebovitz earned permission from the U.S. State Department to bring
Haile and his mother here. They arrived in March to stay with Mike
Naizghi and his family. He's a refugee from Eritrea living in Bowie.
Zebovitz is performing the surgery for free. Anne Arundel Medical
Center is absorbing its own expenses.
The work begins
Dr. Bryan Ambro, an assisting plastic surgeon, sews closed Haile's
eyelids. He cuts a crescent along the teenager's scalp. Ambro wore his
black sneakers today — scalps bleed.
Haile himself will turn the screws each day.
The cut is widened, and resident surgeon Anish Chavda pushes a metal
scrape against the skull. Four surgeons work the skin from the bone.
An hour passes before they expose the cheeks.
They fold Haile's face down on his chin.
Zebovitz drills through the cheekbones, thin as popsicle sticks. The
titanium distractor is anchored with twists of a modified
Phillips-head screwdriver.
More than four hours have passed; the jaws remain. But Zebovitz asks a
nurse to call Haile's mother.
The nurse dials as he's preparing the breathing tube. The surgeons
will thread the tube through a hole beneath Haile's chin so they may
work the jaws without obstruction. They will sew closed the hole,
maybe pause to stretch. Then comes four weeks of turning the screws,
those gears to construct Haile's new face.
The nurse speaks gently into the phone.
"Everything is fine. Everything is OK. We still have a long way to go."
Received on Sat Aug 01 2015 - 11:06:26 EDT